Tag: functionalneurologicaldisorder

Talking About FND — Why It’s So Hard and What It Reveals About Awareness

Living with Functional Neurological Disorder (FND) challenges individuals, particularly in explaining their fluctuating and unpredictable symptoms. This difficulty, compounded by a fear of not being believed, creates anxiety during assessments. Limited awareness of FND and its complexities perpetuates isolation. Advocating for understanding and visibility is crucial for those affected.… Read More Talking About FND — Why It’s So Hard and What It Reveals About Awareness

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Sustainability Shaped by Bodies, Energy, and Unpredictability

Sustainability is often viewed as consistency in output and routines, assuming reliable capacity. However, for artists with conditions like Functional Neurological Disorder, capacity fluctuates unpredictably. Traditional models neglect factors like fatigue and cognitive fog, failing to acknowledge that these variations are not discipline failures, but part of the natural experience of being human.… Read More Sustainability Shaped by Bodies, Energy, and Unpredictability

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Living With FND: Three Months That Changed How I See Disability

The author reflects on their challenging experience with Functional Neurological Disorder (FND), which confined them to their home for months. They highlight the emotional, physical, and financial strains of living with a disability, the profound isolation felt, and the struggle to maintain independence. The narrative emphasises the importance of awareness and compassion for those with hidden disabilities.… Read More Living With FND: Three Months That Changed How I See Disability

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What People Ask About FND: A Gentle Guide

It’s been a while since I’ve written about Functional Neurological Disorder (FND), and I’ve been reflecting on how often people—friends, family, even professionals—ask the same questions. Not out of ignorance, but from a place of confusion, concern, or curiosity. So here’s a gentle guide to the most frequent questions I hear, shaped with clarity and… Read More What People Ask About FND: A Gentle Guide

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post four: the quirks of the cottage

This cottage doesn’t always make sense. The wallpaper doesn’t quite meet the ceiling. The cabinet doors don’t fully align. The paint peels below the window, and the light fitting still hangs unfinished—wires exposed—waiting, like a sentence left unfinished. They’re part of the rhythm I live with and they remind me that comfort isn’t about control—it’s… Read More post four: the quirks of the cottage

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post three: decorating as emotional labour

Before and after images rebuilding with filler Living with a fluctuating neurological condition and navigating neurodivergence means that decorating isn’t a straightforward task. It’s a layered process shaped by sensory thresholds and emotional pacing. I don’t decorate quickly. I decorate slowly, with care and consideration, because it’s important to me. The process isn’t just physical—it’s… Read More post three: decorating as emotional labour

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